This is the story of a boy who is sweet as honey, funny as three stooges (combined), mature as his mother, brave as a lion that I am proud to call my son.
I want to share Caden’s story, in my first attempt to reach out to parents who might need some help, like I did, for an extreme/horrendous case of eczema. I am not out to win any contest for who has worse eczema, but I will say, this is not your “run-of-the-mill” eczema that crops up occasionally in small patches. This is type of eczema consumes the entire body from scalp to toes.
Caden started with eczema at around 9 months of age: at that point it wasn’t too serious, more like the simple eczema behind the knees kind of eczema. Then, at the age of three, things started spiraling downward and didn’t stop. One morning he would wake up with red swollen skin on his arms, then his legs, then it would retreat and come flaring back worse and worse. Every night Caden was up 7-10 times a night. My friends would say, “Gosh it’s like having a newborn again”. Not really. Because there are no newborns that I know of who wake up with half of their skin scratched off then are hospitalized from dehydration because so much of their skin is gone, they can’t maintain normal body temperature. More like a burn victim who is fighting for their life, than a newborn needing a warm bosom for milk. But I digress. I am not here to vent, I am here to share what I learned.
What I learned is that it was hard to find resources for kids with this serious eczema- and I would like to invite anyone who needs help or has experience to contact me directly or refer me to your friends. I took Caden to a place called National Jewish Health in Denver, CO. They taught me how to handle his situation in a consistent and proven way that has given us some hope. Mostly, their treatment consists of multiple baths and immediate and ample moisturizing with vanicream to protect his skin and keep bacteria from finding a home on his skin. But there are so many additional facets to the treatment.
Ultimately, what I want to share with readers is that I have a new perspective on life as a result of Caden’s struggles. I have a new level of respect for anyone who deals with chronic illness. We have struggled for three years, and it feels like a lifetime. If your child struggles from eczema, please feel free to comment, question or contact me. I will responds quickly. I can tell you that we tried MANY things to no avail. As for Caden, since we returned from Denver, he has been improving but they’re still not great. Kids and adults still stare and ask him why has sores everywhere or why he is so red. He is incredibly well adjusted with his reactions and responses and I am really proud of his confidence. Of course, he seems fine, but it breaks my heart each and every time someone someone stares at him.